Web Survey Bibliography
Background: Web or Internet-based surveys are increasingly popular in health survey research. However, the strengths and challenges of Web-based surveys with people living with human immunodeficiency virus (HIV) are unclear.
Objective: The aim of this article is to describe our experience piloting a cross-sectional, Web-based, self-administered survey with adults living with HIV using a community-based participatory research approach.
Methods: We piloted a Web-based survey that investigated disability and rehabilitation services use with a sample of adults living with HIV in Canada. Community organizations in five provinces emailed invitations to clients, followed by a thank you/reminder one week later. We obtained survey feedback in a structured phone interview with respondents. Participant responses were transcribed verbatim and analyzed using directed content analysis.
Results: Of 30 people living with HIV who accessed the survey link, 24/30 (80%) initiated and 16/30 (53%) completed the survey instrument. A total of 17 respondents participated in post-survey interviews. Participants described the survey instrument as comprehensive, suggesting content validity. The majority (13/17, 76%) felt instruction and item wording were clear and easy to understand, and found the software easy to navigate. Participants felt having a pop-up reminder directing them to missed items would be useful.
Conclusions: Strengths of implementing the Web-based survey included: our community-based participatory approach, ease of software use, ability for respondents to complete the questionnaire on one’s own time at one’s own pace, opportunity to obtain geographic variation, and potential for respondent anonymity. Considerations for future survey implementation included: respondent burden and fatigue, the potentially sensitive nature of HIV Web-based research, data management and storage, challenges verifying informed consent, varying computer skills among respondents, and the burden on community organizations. Overall, results provide considerations for researchers conducting community-based participatory Web-based survey research with people living with HIV.
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Web survey bibliography (345)
- Mind the Mode: Differences in Paper vs. Web-Based Survey Modes Among Women With Cancer; 2017; Hagan, T. L.; Belcher, S. M.; Donovan, H. S.
- Web-Based Survey Methodology; 2017; Wright, K. B.
- Handbook of Research Methods in Health Social Sciences; 2017; Liamputtong, P.
- Lessons from recruitment to an internet based survey for Degenerative Cervical Myelopathy: merits of...; 2017; Davies, B.; Kotter, M. R.
- Achieving Strong Privacy in Online Survey; 2017; Zhou, Yo.; Zhou, Yi.; Chen, S.; Wu, S. S.
- Measuring Subjective Health and Life Satisfaction with U.S. Hispanics; 2017; Lee, S.; Davis, R.
- The Effect of Respondent Commitment on Response Quality in Two Online Surveys; 2017; Cibelli Hibben, K.
- In search of best practices; 2017; Kappelhof, J. W. S.; Steijn, S.
- Rates, Delays, and Completeness of General Practitioners’ Responses to a Postal Versus Web-Based...; 2017; Sebo, P.; Maisonneuve, H.; Cerutti, B.; Pascal Fournier, J.; Haller, D. M.
- Web Health Monitoring Survey: A New Approach to Enhance the Effectiveness of Telemedicine Systems; 2017; Romano, M. F.; Sardella, M. V.; Alboni, F.
- Gathering Opinions on Depression Information Needs and Preferences: Samples and Opinions in Clinic Versus...; 2017; Bernstein, M. T.; Walker, J. R.; Sexton, K. A.; Katz, A.; Beatie, B. E.
- Oversampling as a methodological strategy for the study of self-reported health among lesbian, gay and...; 2017; Anderssen, N.; Malterud, K.
- Demographic Question Placement: Effect on Item Response Rates and Means of a Veterans Health Administration...; 2017; Teclaw, R.; Price, M.; Osatuke, K.
- Comparison of response patterns in different survey designs: a longitudinal panel with mixed-mode and...; 2017; Ruebsamen, N.; Akmatov, M. K.; Castell, S.; Karch, A.; Mikolajczyk, R. T.
- Survey mode influence on patient-reported outcome scores in orthopaedic surgery: telephone results may...; 2017; Hammarstedt, J. E.; Redmond, J. M.; Gupta, As.; Dunne, K. F.; Vemula, S. P.; Domb, B. G.
- Comparing Twitter and Online Panels for Survey Recruitment of E-Cigarette Users and Smokers; 2016; Guillory, J.; Kim, A.; Murphy, J.; Bradfield, B.; Nonnemaker, J.; Hsieh, Y. P.
- Web based health surveys: Using a Two Step Heckman model to examine their potential for population health...; 2016; Morrissey, K.; Kinderman, P.; Pontin, E.; Tai, S.; Schwannauer, M.
- “Better do not touch” and other superstitions concerning melanoma: the cross-sectional web...; 2016; Gajda, M.; Kamińska-Winciorek, G.; Wydmański, J.; Tukiendorf, A.
- Methods for Evaluating Respondent Attrition in Web-Based Surveys; 2016; Hochheimer, C. J.; Sabo, R. T.; Krist, A. H.; Day, T.; Cyrus, J.; Woolf, S. H.
- Question order sensitivity of subjective well-being measures: focus on life satisfaction, self-rated...; 2016; Lee, S.; McClain, C.; Webster, N.; Han, S.
- Using Visual Analogue Scales in eHealth: Non-Response Effects in a Lifestyle Intervention; 2016; Kuhlmann, T.; Reips, U.-D.; Wienert, J.; Lippke, S.
- A Case Study on the Use of Propensity Score Adjustments with Web Survey Data; 2016; Parsons, V.
- Using official surveys to reduce bias of estimates from nonrandom samples collected by web surveys; 2016; Beresovsky, V.; Dorfman, A.; Rumcheva, P.
- A Feasibility Study of Recruiting and Maintaining a Web Panel of People with Disabilities; 2016; Chandler, J.
- Exploration of Methods for Blending Unconventional Samples with Traditional Probability Samples; 2016; Gellar, J.; Zhou, H.; D.; Sinclair, M. D.
- Evaluation of mode equivalence of the MSKCC Bowel Function Instrument, LASA Quality of Life, and Subjective...; 2016; Bennett, A. V.; Keenoy, K.; Shouery, M.; Basch, E.; Temple, L. K.
- Population Survey Features and Response Rates: A Randomized Experiment; 2016; Guo, Y.; Kopec, J.; Cibere, J.; Li, L. C.; Goldsmith, C. H.
- Web Health Monitoring Survey: A New Approach to Enhance the Effectiveness of Telemedicine Systems ; 2016; Romano, M. F.; Sardella, M. V.; Alboni, F.
- Question order sensitivity of subjective well-being measures: focus on life satisfaction, self-rated...; 2016; Lee, S.; McClain, C.; Webster, N.; Han, S.
- Facebook, Twitter, & Qr codes: An exploratory trial examining the feasibility of social media mechanisms...; 2016; Gu, L. L.; Skierkowski, D.; Florin, P.; Friend, K.; Ye, Y.
- Helping respondents provide good answers in Web surveys; 2016; Couper, M. P.; Zhang, C.
- The Effects of a Delayed Incentive on Response Rates, Response Mode, Data Quality, and Sample Bias in...; 2016; McGonagle, K., Freedman, V. A.
- Feature phones no barrier to conducting an effective conjoint study ; 2016; de Rooij, R.; Dossin, R.
- Patient preference: a comparison of electronic patient-completed questionnaires with paper among cancer...; 2016; Martin, P.; Brown, M.C.; Espin‐Garcia, O.; Cuffe, S.; Pringle, D.; Mahler, M.; Villeneuve, J.;...
- Detecting Insufficient Effort Responding with an Infrequency Scale: Evaluating Validity and Participant...; 2016; Huang, J. L.; Bowling, N. A.; Liu, Me.; Li, Yu.
- On-line life history calendar and sensitive topics: A pilot study; 2016; Morselli, D.; Berchtold, A.; Granell, J.-C. S.; Berchtold, And.
- An experiment comparing grids and item-by-item formats in web surveys completed through PCs and smartphones...; 2016; Revilla, M.; Toninelli, D.; Ochoa, C.
- Assessing the Effects of Participant Preference and Demographics in the Usage of Web-based Survey Questionnaires...; 2016; Mlikotic, R.; Parker, B.; Rajapakshe, R.
- Improving Inpatient Surveys: Web-Based Computer Adaptive Testing Accessed via Mobile Phone QR Codes; 2016; Chien, T. S.; Lin, W.S.
- Comparing online and telephone survey results in the context of a skin cancer prevention campaign evaluation...; 2016; Hollier, L.P.; Pettigrew, S.; Slevin, T.; Strickland, M.; Minto, C.
- Collecting Data from mHealth Users via SMS Surveys: A Case Study in Kenya; 2016; Johnson, D.
- Effect of a Post-paid Incentive on Response to a Web-based Survey; 2016; Brown, J. A.; Serrato, C. A.; Hugh, M.; Kanter, M. H.; A.; Spritzer, K. L.; Hays, R. D.
- Reducing Underreports of Behaviors in Retrospective Surveys: The Effects of Three Different Strategies...; 2016; Lugtig, P. J.; Glasner, T.; Boeve, A.
- Quantifying Under- and Overreporting in Surveys Through a Dual-Questioning-Technique Design. ; 2016; de Jong , M.; Fox, J.-P.; Steenkamp, J. - B. E. M.
- Take the money and run? Redemption of a gift card incentive in a clinician survey. ; 2016; Chen, J. S.; Sprague, B. L.; Klabunde, C. N.; Tosteson, A. N. A.; Bitton, A.; Onega, T.; MacLean, C....
- Creation and Usability Testing of a Web-Based Pre-Scanning Radiology Patient Safety and History Questionnaire...; 2016; Robinson, T. J.; DuVall, S.; Wiggins III, R
- A multi-group analysis of online survey respondent data quality: Comparing a regular USA consumer panel...; 2016; Golden, L.; Albaum, G.; Roster, C. A.; Smith, S. M.
- The effect of email invitation elements on response rate in a web survey within an online community; 2016; Petrovcic, A.; Petric, G.; Lozar Manfreda, K.
- Quota Controls in Survey Research.; 2016; Gittelman, S. H.; Thomas, R. K.; Lavrakas, P. J.; Lange, V.
- Internet-administered Health-related Quality of Life Questionnaires Compared With Pen and Paper in an...; 2016; Nitikman, M.; Mulpuri, K.; Reilly, C. W.